My mother, 78, has MS & is about to run out of Cylert aka Pemoline, a drug taken off market by FDA in 2006. She depends on this to function... We found a forgotten supply of Cylert in Casper, Wyoming last year and have scoured the world looking for more. Anyone with pharmacy links? ( Cylert was taken off market because it caused liver problems in some children. Not a concern for Mom. She also uses bee stings to fight MS.)
I don't know anyone who works in the pharmacy world -- but I do know a lot of people. (So does Len -- he'd just Twittered to
Robert Scoble moments earlier.) And so do the people I know. Surely, somehow, someone we know must be able to help Len Edgerly out.
Mom jokes she'll get a tatoo that says "I'm here because of Twitter" if my effort to find FDA-banned Cylert aka Pemoline for her MS succeeds
Now wouldn't THAT be a positive social media story?
clipped from: justinkownacki.blogspot.com